Monday, 15 February 2010
Alzheimer's: Part 9 – Separated
By William Weatherstone of The Diesel Gypsy
From the day that I sent my wife to the emergency of our local hospital, she has never returned home.
Since she had started the constant wandering throughout the apartment, she started to walk around the secured ward and on the second day, she fell and cracked her pelvic bone. She was bedridden and started to deteriorate fast. They could not operate and decided to heal by bed rest.
Eventually they tried to teach her to walk again through physical therapy but she could not get past two or three steps while being supported and then balked at continuing. She spent five weeks in the hospital and continually went downhill.
There is a long waiting list to get into a nursing home. There are three within a 100-mile radius, and the fastest entry will be at least 18 months.
There is a private retirement home in town that I was not aware of. It is at the end of a long lane at the edge of town, and is not noticeably visible.
The hospital administrator suggested that we apply for temporary living quarters. They have a three-story building and the second floor is totally secured for people with dementia or Alzheimer’s. They have the first and third floor for able retirees who are free to come and go as they please.
There are couples there who are separated by two floors. One alone on the main floor and the other with Alzheimer’s on the second floor which needs constant surveillance and is staffed 24 hours a day by professional caregivers and a registered nurse.
Because it is a retirement residence and not a full-fledged nursing home, they require that the individual be able to at least bear weight for just a moment. (To just be able to stand, with assistance, so that one nurse or caregiver can turn the person alone to sit down into a wheel chair.)
We applied for residence and the retirement home sent a nurse over to the hospital to evaluate my wife’s ability to bear weight with assistance. She had to be slid from the bed to a standing position on the floor while the nurse turned her a quarter turn to be lowered into a wheel chair. The nurse accepted her condition and called the ambulance to have her transported to the retirement home directly. She is sharing a room with another lady, who is quiet and friendly.
She is finally getting settled in and adapting to the hours of feeding and sleeping. I am allowed to visit any time, 24 hours a day. I have the security codes to get into the second floor at any time. Her retention is only lasting for a moment or two, but she still recognizes me when I approach.
There was a day when she was wandering down the hallway and stopped, sat down and passed out. The nurse was there in a flash. She tested her sugar, as she's diabetic, but found it okay. She then went cold and clammy and the nurse could not get a blood pressure reading. She was sent directly to the hospital emergency room and was there in minutes.
The ambulance was rushing out of the driveway as I was coming in and I had no idea it was with my wife. I immediately took off for the hospital. The staff and the ambulance people are first class, and they bend over backwards to help you.
They found that all the drugs that she was taking were too strong and her body couldn’t take it any more since she has shrunk to under five feet and less than 100 pounds. She was stabilized and back the next day.
Neither of us has ever been in a hospital before, so all these new experiences are at times driving me crazy. If it were not for all the help from different organizations around here, I would be a total basket case for sure.
As I write this, she was sent to the hospital again just a few hours ago and found that she has a bladder infection. She is now on antibiotics and will be okay in a day or two.
She is deteriorating at a very fast pace and I have no idea as to how long she will last. I visit twice a day and the odd time, three visits. All this has happened in less than a year. (Scary) As mentioned before, I have never been an emotional person, but every time I leave her I am weeping.
I am now back at the gym trying to get my body back in physical shape and reinstalling my web site to get my mind back in shape.
This disease is devastating and affects all of those people close to the patient. I wish you all good health and long life.
[INVITATION: All elders, 50 and older, are welcome to submit stories for this blog. They can be fiction, non-fiction, poetry, memoir, etc. Instructions for submitting are here.]
Posted by Ronni Bennett at 02:30 AM | Permalink | Email this post
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Thank you for the update, William. I had been wondering how you and your wife were doing.
I am so sorry for your troubles. It is no wonder that you weep; you are going through a terribly emotional time and have shown great strength during your ordeal.
I think you are showing great courage and are taking an intelligent path by going to the gym. You need to stay healthy to keep going.
Posted by: Darlene | Monday, 15 February 2010 at 08:42 AM
I also thank you for the update. I have been watching for it. Yes, you need your strength and health so you can deal with all of this. Many readers send you strength and patience.
Posted by: NSC | Monday, 15 February 2010 at 10:26 AM
I have been on the lookout for a report from you,too,William.
I am sorry your wife is no better but at least you know she is getting good,compassionate care and you are doing your very best for her.
Posted by: Nancy | Monday, 15 February 2010 at 12:14 PM
I'm so glad you made the time to tell us how you are. I'm sorry she is in a home now, but they sound like a caring bunch. You are doing the best for you too, and just know that we care.
Posted by: Mage B | Monday, 15 February 2010 at 12:38 PM
I, too, had wondered how you all were doing. Of course, I wish you the best. Words don't work at this point.
Posted by: James J Henry Jr | Monday, 15 February 2010 at 12:43 PM
I’m so sorry to read about your situation, but the care being provided for your wife sounds exceptional and the fact that you are also taking care of yourself is very good to hear.
Posted by: Claire Jean | Monday, 15 February 2010 at 12:48 PM
As James said, there really are no words, but glad to hear you are making wise choices for both of you, hard as they are. You are truly devoted, and you'll always be glad you were.
Posted by: Lyn Burnstine | Monday, 15 February 2010 at 01:57 PM
William, I've been wondering about your situation and I'm glad you wrote again. Anything I might say has already been said above so I will just echo those sentiments and add my wish that you stay strong and that your wife can continue to stay in her current living place, which seems to be a better placement in so many respects; not the least of which your ability to visit her with greater ease.
Posted by: Brenda | Monday, 15 February 2010 at 03:22 PM
Thru your postings I have learned so much about Alzheimer's. You are truly a special person, husband & friend. My prayers are with you both always.
Posted by: Nancy | Tuesday, 16 February 2010 at 07:10 PM
hi old timer you no we are thing about you and your wife all the time good to see you back on line.be in touch young bill.
Posted by: william | Sunday, 28 February 2010 at 03:30 AM
Hi! I join everybody else in saying "thank you" for the update, because I, too, have been wondering how you are. This is a very tough thing to go through.
Everything else aside, I hope your wife seems to be in relatively good spirits.
My Mom lasted maybe two or three years when she lost the ability to walk. (She, too, recovered from a cracked pelvis through bed rest.) One reason she lived so long is that we used some anti-dementia medication; we would not have allowed it to be used except that Mom seemed reasonably happy and engaged with life in the nursing home. Without the meds, she would have died about two years sooner (she started to lose the ability to swallow).
We were very lucky; Mom had a living will saying that she wanted to be allowed to die if she were suffering from severe or profound dementia. We were also very lucky, in hindsight, that we had enough time to get used to her condition. A year does seem really fast for such a rapid progression.
Anyway, there is light and life at the end of tunnel. There's a saying I really like: "If you're going through hell...keep going!"
Posted by: mary jamison | Monday, 01 March 2010 at 10:38 AM
I was browsing this site when I came across part 3, so I searched for more posts and found this one
It caught my attention because my husband of 82 was diagnosed nine months ago with Alzheimer's.
Your wife's swift decline is mind-boggling. Changes have happened so fast, your head must be spinning. You're very courageous in caring for her and writing about it.
Others can draw courage from your stories. My husband is in good health except for the dementia, so he could live a long time this way. I'm learning all I can about it so I can cope and help him cope with his diminishing abilities.
I will pray for you and your wife, asking for God's Mercy.
Posted by: Maryellen Jones | Wednesday, 17 March 2010 at 10:22 PM
WERE ARE YOU MY OLD FREIND. DONT SHUT US OUT WE DO CARE PLEASE KEEP IN TOUCH.NOT SO OLD BILL.
Posted by: billy | Monday, 05 April 2010 at 09:22 AM