REFLECTIONS: Health Care
Friday, 11 September 2009
Pulitzer Prize-winning journalist Saul Friedman (bio) writes the bi-weekly Reflections column for Time Goes By in which he comments on news, politics and social issues from his perspective as one of the younger members of the greatest generation. He also publishes a weekly column, Gray Matters, on aging for Newsday.
In the kind of journalism I have practiced these 50 years, after my by-line, I have mostly stayed out of the story. I don’t much care for celebrity journalists who make themselves the story; they tend to become entertainers who don’t entertain.
But I will make an exception here, not to entertain, but to talk about my own health problems and care. And because I am 80, I think my experiences give me some credibility. I’ll get to that later, but along with my years of expertise gathered from writing my column on issues affecting older people, perhaps I can dispel some of the idiotic notions about the health care debate, most of which come from younger people who are grinding axes for the insurance or drug companies, or who are just plain ignorant and believe they will never get sick or old. What is outrageous is that supposedly responsible Republicans remain silent amid the insanity of the kooks.
I don’t think most older people fell for those “death panel” lies. That came from right-wing nuts who are as young as they are ignorant and Republican members of Congress who would just as soon kill Medicare and Social Security, which would kill more of the old. Most older people are not afraid of talking about and planning for their incapacity or death or that of a loved one.
It’s common for hospitals and doctors to ask for and demand to have in their files, a patient’s living will and/or an advance directive. In my late sister-in-law’s community for older people, most of the residents had “DNRs” (Do Not Resuscitate) tacked to their refrigerators in the event they could not speak for themselves.
Most older people I know also have designated friends or children as health care proxies. Most forms for these documents are available online or for little cost. My living will and most others tells doctors and relatives when to pull the plug. Unfortunately, many doctors and relatives are reluctant to have such a responsibility.
Many older people have consulted with and paid good money to lawyers for these end-of-life documents. In one of the health care bills, they could instead consult their physician. Who but ignorant trouble-makers would object and make a death conspiracy out of a section in one of the health care proposals that would authorize Medicare to pay a doctor $75 once every five years to give some advice on these documents and the possible choices? Is the doctor going to order your death for $75?
Who but some ignorant fool would deny a person the information that if he/she or a loved one is suffering from a painful, perhaps terminal illness that hospice or palliative care would be available to deal with pain and suffering?
Did you know that Medicare pioneered in paying for the help of hospice and palliative care for the terminally ill, forcing most insurers to offer the same benefit? Did you know that if you defeat the terminal illness and live, you can get off hospice care without having to give the money back?
But I’ve gotten ahead of myself. Time magazine, among others, report that older people are surprisingly hostile to what has been wrongfully called “Obamacare.” And many have split with AARP because of its seeming support for the reforms. But I believe that’s because President Obama and the AARP went too long before making it clear what precisely they are for in health reform.
The president’s speech to a joint session of the Congress was typically superb, in setting out his proposals for reforming health insurance. But it’s not simply the health insurance industry that needs reforming; I doubt that’s possible. It’s health care that needs a radical overhaul.
On the morning after his speech, I heard a Michigan woman calling in on a Washington, D.C. radio show. Her insurance premium from Blue Cross/Blue Shield for her family of three was going up 33 percent from $1,000 a month because, she said, “the insurance company was going to be forced to cover pre-existing conditions.” Does anyone believe the insurance industry will agree to lower profits and executive salaries?
What remains on the table, despite Obama’s words, are cumbersome, top-heavy confusing sausages called health care reform ground out by five different committees. Obama made a strong case for liberal, activist government, but a weaker case for a non-profit activist government plan among the insurance choices.
I still don’t know what the president will fight for. Obama has already made unseemly deals with drug companies that will allow them continued profits and power. And the president rarely mentions that what he calls reforms won’t go in effect until 2013 or as late as 2023. Medicare went into effect 11 months after its passage.
As this site has said many times, Medicare for All, which gradually covered all Americans would have been the simplest, most straightforward health care reform. But Obama has said he feared the consequences for the insurance industry and charges of a government take over of health care. But everything I’ve read indicates that most people (and businesses) would give up paying through the nose for their shaky insurance if they had a chance to sign up for Medicare.
I will wager that if Americans were told that health care reform would give them the deal I have - original Medicare plus a private plan – things would be less confusing all around. Ronald Reagan was smart enough to leave Medicare alone, years after denouncing it as socialistic. Even the rabid right would have a more difficult time attacking Medicare as government control of health care. It is. And too many older people and their kids know it and like it.
I always thought it was a mistake to call the reform I favor “single-payer.” Why not call it after one of the most popular health insurance programs we have – “Medicare For All?” I was calling it that in my column as early as a dozen years ago. And Dr. Marcia Angell, then editor of the New England Journal of Medicine, has for years called for the gradual inclusion of all Americans into Medicare.
As I wrote, Medicare’s finances would be enhanced by enlarging and strengthening the risk pool with younger, healthier people (paying taxes and premiums). Otherwise Medicare could die of old age. And that would be a tragedy.
That possibility (if the wingnuts get their chance) and my hope for Medicare For All, brings me to my personal history with health care and Medicare, for I was fortunate to be struck with serious, life-threatening problems after I became eligible for Medicare, which meant I never had to check first to see if I was covered.
On the eve of April Fool’s Day, 2003, just as I had finished a column and was playing solitaire, my right hand suddenly lost control of the mouse. A call to 911, a trip to the emergency room and by morning I had had a partly paralyzing stroke affecting my right side and my speech. Fortunately it was not worse.
I had eight weeks of intensive rehabilitation at a top hospital and was permitted to stay another several weeks because my wife, during one of her frequent trips to and from the hospital, had a serious auto accident and was herself hospitalized.
To sum up: Medicare paid for all our medical bills, supplemented by my wife’s secondary insurance, similar to what is available to all federal employees including members of Congress. Indeed, a range of choices similar to the Federal Employees Health Benefits are what would be offered in one of the bills pending in Congress.
On Valentine’s Day, 2005, came another blow: I was diagnosed with esophageal cancer in its early, curable stage. But here was my initial fear: Would the best surgeon at Johns Hopkins Medical Center take on a Medicare patient in his seventies who was partly paralyzed by a stroke?
I learned, to my relief, that the young surgeon, Dr. Stephen Yang, specialized in cases involving older people. There was no question that Medicare would cover the radiation, the chemotherapy, the 12 hours of surgery, the follow-up surgery and every checkup since.
Contrast that with the private Medicare Advantage policies that can nickel and dime you to death even though they make great profits and get $10 billion a year in subsidies from you and me. I reported on a recent position paper by UnitedHealth, recommending that Medicare could save money if patients shop for less expensive care, or consider alternatives to surgery for certain cancers at certain ages.
Rationing, of course, is what helps private insurers earn profits and pay high salaries for their CEOs. Never has Medicare told me, “You’re too old.”
One of the several health care proposals before the Congress comes closest to Medicare for All. It was approved by the Democratic majority on the Senate Health, Education, Labor and Pensions Committee (HELP) without a single Republican vote. It was Senator Edward Kennedy’s bill.
Why didn’t Barack Obama put his actions where his fine words were and tell the Democratic Congress to pass the Kennedy bill?
At The Elder Storytelling Place today, Helen: Coattails of Time
Absolutely!
Posted by: zuleme | Friday, 11 September 2009 at 04:16 AM
I'm convinced that our President's highest value is to try to dial down our conflicts and unite people around shared values. I have no trouble with the expressed values. I don't, however, think that you can govern without being willing/able to fight.
So here we are... thoroughly muddled and liable to get a "reform" that does far less than it should.
Posted by: janinsanfran | Friday, 11 September 2009 at 05:38 AM
I think its up to us to make our voices heard to those who represent us in Congress. And also,letting the media know we want true information, facts, not pontification.
Posted by: NancyB | Friday, 11 September 2009 at 06:18 AM
Once again Saul, a wonderful, informative column. Bless you! I just had a similar experience. My mom is 94 years old & quite independent, still living alone but close to me & my sister. Last week she had a heart attack & was sent to a local heart center. While in the ER she told me she didn't want "anything done" & refused a catheterization & stent. (She had 2 stents put in about 6 years ago)I asked her to tell the dr. & she did without hesitation. "I'm 94 & I've lived a long time. I'm ready to die so just let me go!" The dr, said fine, I'll make a note of that & she signed a DNR. How sensible is that? She's home now & doing remarkabley well. In fact she made an appt. to have her hair done! If only all of us were able to do the same. Dee
Posted by: Dee | Friday, 11 September 2009 at 06:22 AM
One thing I do not understand is how, as President Obama stated in his speech before Congress:
"Reducing the waste and inefficiency in Medicare and Medicaid will pay for most of this plan"
I agree that there is waste and ineficiency but how will fixing that pay for most of the health care reform.
When I heard these words from Obama my mind registered a danger signal since my husband and I are both on Medicare. We are extremely satisfied and grateful for our health care and do not want drastic cuts that might lead to lower quality care.
Poor choice of words by the President in this case.
Posted by: chancy | Friday, 11 September 2009 at 06:39 AM
Great column. What a wacky situation to be in as a country, when our health care system is so wounded. Our lives would be so different if all people had access to health care.
You made mention of how unhealthy our diet and lifestyle is, contributing to high obesity, diabetes and other health issues. Michael Pollan wrote a great article on this yesterday in the NY Times.
Posted by: Gaea Yudron | Friday, 11 September 2009 at 07:41 AM
Fine column, as usual.
There are obvious challenges trying to come up with a suitable plan. The straightforward Medicare for All is far too simple to be embraced by bureaucrats and far too frightening to insurance and drug companies, but by mentioning it you did hit on something that I've found frustrating. I think that one of the problems the President has had is not having a memorable name for the plan, ill-defined though that plan may be. It should have been called something like the American Health Freedom Plan – something that could be sold like any other product. All the PR people and strategists in D.C. and no one realized that you need to package big legislation just like you package a candidate? Health care reform is clearly a topic that doesn't inspire logical debate (so passe), so why not adopt the tried and true, All American corporate approach? Advertising with a catchy slogan!
Sadly, I'm not joking.
Posted by: Cynthia Friedlob | Friday, 11 September 2009 at 07:54 AM
I was hoping that Obama would stand firm behind the Public Option (It should have been re-named, as has been pointed out). I really thought he was signaling that he would listen if someone had a different plan that would bring the cost down and cover everyone; otherwise, he would fight for the Public Option. Since there is no other plan that would reduce costs and cover everyone, I believed that this was his way of seeming to be bipartisan and leaving the door open to demanding the public option. Now I am not so sure.
Posted by: Darlene | Friday, 11 September 2009 at 09:24 AM
I want less government in my life, not more. That's why "those people" make up such crazy reasons to be against health care. They are scared, that's all. But, once they get a little government, like social security, they say, I like it but, please, no more. They get a little more, like medicare, and they say ok, it's fine, but please, no more. It's like salt, there will be a point where it ruins the food (country) but maybe not this time.
Posted by: John | Saturday, 12 September 2009 at 01:53 AM
This is an excellent article.
Glad you recognized your stroke symptoms and received such prompt medical care.
Some individuals are candidates for special medical treatment (TPA) that can significantly reduce debilitating stroke effects:
...if they meet the criteria for the medications administration.
...if they seek treatment within specified time guidelines.
It has been very important that people seek medical care within three hours of stroke symptoms onset. New research has expanded this time window from 3 to 4.5 hours in certain patients per a scientific advisory from the American Heart Association and American Stroke Association (AHA/ASA.)
Patients, if able, or family members may want to query ER hospital staff about being considered for this TPA treatment. BUT YOU MUST KNOW TIME OF ONSET OF STROKE. Don't fudge on the time (if uncertain, say so) as could be serious medical problem for patient.
I have seen the benefits for patients who have been able to receive this TPA treatment in reversing or limiting residual debilitating effects.
My experience with several upscale retirement communities is when individuals become residents at any level of care from independent to skilled nursing they receive information and forms for specifying end of life choices. Even those older people living outside such a setting are educated to planning for the inevitable but I think this is true mostly with the more educated financially affluent. Those who are most in need of the benefits from the counseling over which some were so upset in the health plan are the usual ones who are deprived -- less educated with lower incomes.
You're quite correct about hospice. Years ago in the beginning most of their patients of whom I was aware were terminal by the end of the three month period. For quite a few years now I see a significant number of hospice patients who live well past that original three to six month criteria and receive hospice care. I also know of some who've had the hospice experience, continue to live months, years longer, but decline further hospice and choose only the palliative care provided by their skilled nursing facility. So many factors enter into such decisions and these choices are highly unique to each individual and their family members.
Some decision-making about treatments for older people can be influenced by the philosophy and point of view of a physician and/or insurance case manager (or their companies point of view the mgr. is expected to follow) before Medicare billing ever enters into the picture. Not all older people are the same and their treatment options need to be predicated on their overall condition, not their age.Patients sometimes need advocates for these reasons -- family members, other medical health care providers.
Posted by: joared | Saturday, 12 September 2009 at 02:32 AM
Poor President Obama continues to hold out hope for uniting "those" that will "never" agree to it. He needs to open his eyes to an apparent truth and proceed with all those of us that believe in his common sense. Geo Bush rammed a lot down our throats...Time to choke it up...
Posted by: Judy W | Sunday, 13 September 2009 at 12:03 PM
OOPS...I meant to say "Cough it up"
Posted by: Judy W | Sunday, 13 September 2009 at 12:04 PM
MEDICARE FOR ALL...that's the way to go! Thank you Mr. Friedman for stating the case for this practical solution for reforming our present Healthcare system.
Posted by: Helen B. Canin | Tuesday, 22 September 2009 at 07:10 AM