Living with Cancer
Friday, 10 May 2019
Let me tell you about my friend, Saul Friedman. Born in 1929, he was a life-long political journalist, reporting for some of the major news outlets in the U.S. - the Houston Chronicle, Knight-Ridder, Newsday and more.
In 1968, he shared a Pulitzer Prize for team coverage of the 1967 Detroit riot, for the Detroit Free Press.
I was privileged and proud when, in November 2009, Saul chose to relocate his bi-weekly Reflections column from Newsday to Time Goes By and added a second weekly column just for us TGB older folks, Gray Matters.
His final column, titled “Gray Matters: Small Miracles”, was published on 18 December 2010, chronicling his years living with cancer.
Saul died of a type of stomach cancer on 24 December 2010. I think you might like that last column – this link will take you to it.
Here we are now these almost 10 years later and it is I who lives with cancer. As Saul well knew, even when chemo or other therapies are going well and even when you feel fine between treatment sessions, the word, the idea, the reality of cancer is always hanging around making a low buzz at the edges of one's consciousness.
Since early January, I have been taking bi-weekly chemo treatments that last all of one day at the chemo clinic and continue with a personal body pump strapped to me for two more days.
So far, these have been remarkably successful, having reduced the size of some of the cancer nodules and maintained that through all the treatments so far. They also make me extra tired so that I nap a lot for a few days, kill my appetite so I lose weight that I can't afford to do and give me a few other, minor side effects that fade within a few days.
The result is that I have about 10 days between the bi-weekly chemo treatments that are almost normal. And don't think I don't appreciate it.
When I met with my oncologist a couple of weeks ago, he suggested that I might want a bit of a rest from the chemo and that I could skip one treatment giving me four weeks between treatments instead of only two.
At first, I rejected the suggestion out of hand. The chemo has been working so well, I thought, why take a chance of disrupting its efficacy. But then, as chemo brain was lifting and other side effects from last week's infusion were fading, I kept thinking about what a nice, little, two-week respite it would be.
And so I have until the end of this month to be chemo-free for which I am grateful.
It is already a good-sized miracle that I am still here. About 90 percent of people diagnosed with pancreatic cancer die with a year.
When I recently realized that it has been almost two years since my diagnosis, I went back to re-read some of Saul's columns about life, death and cancer.
Here is a snippet from one titled, “Reflections: My Companion, Cancer” about how hardly any progress had been made toward curing cancer:
”The moon landing, accomplished in eight years, the Manhattan Project, successful in less than ten years, the eradication of malaria in the U.S., cures for tuberculosis and polio, were American accomplishments in the 20th century. I see no such effort focused on the most vicious killer, cancer.
“You might say I have a vested interest in this. That would be wrong. Unless someone comes up with a magic bullet tomorrow, I will have to live with my constant companion and take my chemo and hope. But too many people, and some of whom you know, are suffering and dying around us.
“I remember what it was like before and after Salk. I’d like my kids to experience that feeling, when the fear of a disease is lifted.”
And this from Saul's final column linked above is less about reporting and more about – well, small miracles. (The “both” he refers to in the first sentence is the brilliant author, political journalist and literary critic, Christopher Hitchens, who died in 2011 of esophageal cancer.)
”Both of us owe our cancers and/or the cures not to divine intervention, but to the miracles of illness and health. They are life affirming.
“Life, illness, happiness, good fortune and bad, even good and bad presidents (I have covered) are all part of what the 11th Century Persian poet Omar Khayyam had in mind when he wrote, 'Be happy for this moment. This moment is your life.' And,
”That inverted bowl they call the sky,
Where under crawling, cooped we live and die.
Lift not your hands to it for help,
For it impotently moves as you or I.”
If, as I sometimes wonder, I am making some small difference for others as I ruminate on and write about my cancer journey, Saul even had something to say to me about that - from the same column:
”The point of all this, in a season made for reflection, is to tell the story of how it feels to become and stay old for one very lucky older American, for most of us, despite and because of illness, embrace life more fully than ever.”
As always, you've hit the nail on the head. Dealing with any chronic illness is the challenge most of us elders must face daily. There are so many, and I've got a couple. I have my own kinds of regular treatments. But I also think I may find the cancer diagnosis added to mine at any check up. I've lost many loved ones to that disease as well. I think they are still around me, these friends and family. They float in my consciousness regularly, and whether they are in a heavenly host or not doesn't really matter. I do hope that the future will offer our new generations a cure for many cancers, and that it will come through science. It's about time!
Posted by: Barb Rogers | Friday, 10 May 2019 at 06:33 AM
Of course you are making a difference. For cancer patients and for anyone who has had the good fortune to be reading here over the past 10 years or so. I am very grateful to have your knowledge and insight and I hope you live a long, long time and keep sharing!
Posted by: Judy Carrino | Friday, 10 May 2019 at 06:48 AM
Thank you for sharing your journey. I have lost friends and neighbors to Pancreatic Cancer and have one runner friend who is now a 5 year (or longer) survivor. You are a woman of great courage although I am sure you do not feel like one and would rather not have had to make this journey.
I am thankful for every day of good health that I have and do not take it for granted. Old age is indeed not for sissies. However the alternative is not to be desired.
Stay strong and may your journey be filled with adventure and joy.
Posted by: Mary | Friday, 10 May 2019 at 07:54 AM
Yes.
Posted by: Kathleen Noble | Friday, 10 May 2019 at 07:56 AM
Words of wisdom. And enjoy those chemo-free weeks!
Posted by: Tom at Sightings | Friday, 10 May 2019 at 08:36 AM
It's a lovely time of year for a little respite. Hope you can get out a bit and enjoy some fresh air and sunshine. Or maybe just read and relax, knowing you don't have to go anywhere for a few weeks.
Posted by: Susan R | Friday, 10 May 2019 at 08:44 AM
Lovely reflections by both you and Saul. Thank you for the share, Ronni
Posted by: yvonne behrens | Friday, 10 May 2019 at 09:57 AM
Thank you, Ronni, for reposting Saul’s post. I was moved by his post and yours. ❤️
Posted by: Mary Robertson | Friday, 10 May 2019 at 10:23 AM
What a wonderful column. I feel an urge to reread all his pages.
Posted by: Mage Bailey | Friday, 10 May 2019 at 10:33 AM
Thank you for all of this. Writers and photographers are documenters of the human condition and so important!
Posted by: Rosemary Woodel | Friday, 10 May 2019 at 01:47 PM
Rock on shining one. You column evokes in me humility, joy, strength, wonder and gratitude. Such gratitude. Thank you.
Posted by: Sarah | Friday, 10 May 2019 at 03:10 PM
Admiration! Thank you! Revel in your chemo vacay!
Posted by: Diane | Friday, 10 May 2019 at 07:32 PM
Thank you for the remembrance of Saul Friedman. I read him at Newsday & was so happy to find him again on TGB! There are some that will never be forgotten & this wonderful & wise man is at the beginning of my list.
Posted by: Ann Stock | Friday, 10 May 2019 at 10:55 PM
Thank you, Ronni, for posting the link to Saul's article. He expressed my belief so well about the reasons why no cure has been found. Cancer is big business for the medical community and the race to the cure ( IMO) lures contestants hoping to be first in order to cash in on a gigantic payday. Medicine is a very competitive industry.
In addition to cancer, Big Medicine continues to make big bucks out of diabetes.
Posted by: TheaT | Friday, 17 May 2019 at 11:12 AM